Our Newest Partner: Loeys-Dietz Syndrome Foundation
Updated: Jun 7
We're excited to announce our newest partner – the Loeys-Dietz Syndrome Foundation. The Loeys-Dietz Syndrome Foundation (LDSF) is dedicated to:
Encouraging education about Loeys-Dietz syndrome and related connective tissue disorders to medical professionals and lay communities in order to aid in identification, diagnosis, and treatment of Loeys-Dietz syndrome
Fostering research about Loeys-Dietz syndrome
Providing a support network for individuals, parents, and families affected by Loeys-Dietz syndrome
Loeys-Dietz syndrome (LDS) is a genetic disorder that affects the connective tissue in the body. The disorder was first observed and described by Dr. Bart Loeys and Dr. Hal Dietz at the Johns Hopkins University School of Medicine in 2005. Individuals with Loeys-Dietz syndrome exhibit a variety of medical features in the cardiovascular, musculoskeletal, skin and gastrointestinal systems. Information about the natural history and management of individuals with LDS continues to evolve. LDS manifests itself in a number of ways; therefore, no two persons with LDS will have identical medical characteristics.
Lipton Strategies is proud to partner with the Loeys-Dietz Syndrome Foundation to facilitate their strategic planning process as they expand their vital work and services from coast to coast. Learn more about the Loeys-Dietz Syndrome Foundation by visiting their website at www.loeysdietz.org.